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21 Sep 07 NYC Walk for Down Syndrome

On September 30, Dave, Karyn, Marley, Nicole and Aunt Angela will walk in the NYC Buddy Walk in support of the National Down Syndrome Society (NDSS).

Thanks to everyone who’s already pledged me or Dave. It’s not too late if you want to donate – just visit our pledge page.

Through Nicole’s therapy, we’ve seen first-hand the benefits of the education, advocacy and research funded by the NDSS. We’ve had lots of ups and downs over the past year, but Nicole’s recent achievements have been especially exciting. Thanks to the support of her amazing therapists, Jane and Robyn, she is:

  • Sitting up with increased stability, reaching for and playing with her toys;
  • Eating solid food, including many finger foods, and gaining weight;
  • Displaying the ability to problem solve by moving in different directions when she can’t reach something;
  • Using her hands to speak, mastering the signs for “give me” and “more” and waving goodbye; and
  • Saying “bye bye” (which was also Marley’s first word!)

There really are so many developmental stages that we just assume our kids are going to reach. This past year, I’ve learned about how amazing the human body and brain are and how much we take for granted. Nicole will achieve everything she needs in her own time and on her own terms, just like all kids. Her therapy is ensuring she has the strength and the knowledge when she’s ready, and we’re so grateful to have it.

We’ll let you know how the Buddy Walk goes – it’s sure to be a great day!



Reader's Comments

  1. |

    It’s really wonderful for us to see how well Nicole is doing. We know Jane & Robyn are doing a great job but we think Mom & Dad and big sister are doing a super job too. Can hardly wait to see you all on the 19th. Love to all, Mom & Dad (Gramma & Grampa).



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